Burning pain and joinaches during recovery

Dear people <3

I am 19 years old and I live in the Netherlands( So sorry for my bad English). The reason why I write here is because in my country I cannot find the answer to my question. So I will try it here.

I have had anorexia and orthorexia for four years. I ate hardly and exercise too much. I am 3 months in recovery now and mentally I feel fine. I am happy and eat a lot and healthy(and sometimes unhealthy, but that’s OK I suppose  ). I have not achieve my target weight yet, but I am on the right road.
But… 2 months ago, in recovery, I get a terrible burning (nerve pain, I think) pain in both my legs from hips to toes. Especially in my knees joints and calves. I also have tingling and a numb feeling in my legs and feet and and I cannot walk. The pain keeps getting worse and now I have pain in my legs, foot, arms, fingers and hands. All my joints hurt and when I try to walk it gets worse.The crazy thins is , is that the pain is migratory; it goes from one joint of muscle to another.
The doctors don’t know what this is and they don’t recognize the pain by anorexia patients who are in recovery. They say I exercise too little or that I have to gain weight so I get more fat and the nerve pain will disappear. Actually, everbody is saying something differently. But I cannot walk so they are asking something impossible.

I am afraid this pain is the consequence of my eating disorder, too much exercise and no eating at all, but I didn’t have the pain during my anorexia. I am a little confused.
So, is there some people who recognize themselves in my story and also had terrible joint pain?

Thank you for reading my story.
Bigs hugs to everbody

Much love

kelsey207's picture

Thank you for posting here! (And don't worry, your English is great!)

I'm not sure I know the answer to your question. I haven't experienced this kind of pain myself, and I don't know that I've heard of a specific case like this. However, as I'm sure you know, eating disorders can have serious phyiscal effects on the body, especially in the case of anorexia where the body isn't getting enough nutrients, so I think it's possible that this condition is the result of your ED. Alternatively, perhaps this is a condition you already had (or were going to develop), but the ED just made it worse or brought it on sooner. (And of course it's possible that it's a rare condition totally unrelated to the ED.) I'm not a medical expert or professional so I can't say for sure. NEDA has a page that details some of the physical effects of EDs on the body; maybe something listed there will be familar to you: https://www.nationaleatingdisorders.org/health-consequences-eating-disorders 

You might just have to keep trying to find a doctor or specialist who knows about this area of health. Sometimes it can be "trial and error" trying to find the health professional who has the answers you need. I definitely think it's in your best interest to keep working towards recovery in the meantime. Being at a healthy weight and in a healthy place with food and body image will only benefit you as you try to solve these other health problems. (And it may help prevent things from getting worse.) It's so great that you've made such progress in recovery so far! Congratulations!!

I wish I had a magical cure or answer for you, but I hope this helped at least a little. If you want to reach out and find out about other resources, you can call or chat online with the NEDA Helpline: https://www.nationaleatingdisorders.org/information-referral-helpline . You may also like this "self-care masterpost"; it has some techniques that can offer support as you keep working toward recovery: https://www.nationaleatingdisorders.org/blog/self-care-master-post .

Good luck! We wish you the best. You deserve to be happy and healthy. :-)

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